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Most parents will agree that raising children is a very humbling experience. But what most of them will never attest to publicly is the daily hardship and struggles that the majority of us will never in one lifetime get to know.
Raising a child with a disability, specifically a learning disability, is difficult but when that child has multiple disabilities, educating them can be a very trying experience.
But as Adi Iva Matakitoga says, the hardship is increased because handicapped children in this country do not have the simple things that most other children, normal or special, around the world take for granted. Ms. Iva has 17 young children, most between the ages of 2 and 8 who come to the school for training in things as basic as eating and visiting the toilet.
Children who have both the physical and mental ability to learn more things can go on for preparatory classes which may lead to regular kindergartens of regular primary schools. A lot of people don’t realize that although the children here are severely disabled, they can still be taught and helped to have some quality of life says Ms Iva.
Unfortunately people tend to want to forget children who are disabled or handicapped. Ms. Iva, or “teacher Iva” as the parents and students at the school call her, say that these special children of the Early Intervention Centre on Brown Street lack some very basic things.
Beginning at 8.30 a.m., the children of the EIC with disabilities ranging from cerebral paralysis (cerebral palsy) to autism arrive at school. For half an hour, Ms Iva, some of the parents of the children, and often two or three caregivers will help the children to settle down.
Most of the time, the children are engaged in free play until 9 a.m. when, if they are lucky, a physiotherapist from the Colonial War Memorial Hospital will treat the children, most of whom are have at least three to five physical disabilities.
“If CWMH is overloaded, we might not be very lucky to get the physiotherapy because they have to go there first,” Iva said. “We have only one physiotherapist looking after the three special schools in the area so we are always in need of more.”
After that, the children are all involved in individually designed development programmes where educational tools and aids specifically made for children with special needs are used to teach each child basic skills.
“A lot of children come to us with no skills whatsoever and the EIC is really an assessment centre where we can look at what the child is able to do and match it against the development stage at which they should be at according to their age,” Iva said. “But often they leave here much stronger and able to do basic things.”
At around 10 to 11 a.m., the children have some musical sessions during which the parents and caregivers join the children to sing basic nursery rhymes and songs.
“Soon after that is lunch, and even that is not the easy carefree affair that noisy halls in other schools around the country usually are. What most people don’t realize is that we have to teach these children basic things like eating and going to the toilet,” Iva said.
“These are skills that they need to have and most of the time, the children will not be able to do for themselves things which we take for granted but things which can help give them a more decent life.”
By 1 p.m., the children are well on their way home and Ms. Iva and her caregivers stay back to clean up, lock up and prepare for another day. While teaching children seems fairly normal, a school day with the children of the EIC will show you otherwise.
“My biggest hope and I think this is something that all teachers in this field will agree to, is that all we really want is to teach and train these special children in such a way so that they might have some chance of a decent life,” she said.
Although most people think that once you are disabled, you can’t have a good life, it is not true. The life that these children are in if they are not helped and supported is worse. All we really need is help and support from the community and we can help these children.
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The furniture is sparse although gay and colourful. The educational tools and toys are in short supply and the school does not even have a play ground of a play corner. What most people take for granted in their homes and workplaces could go a very long way here, says Iva.
“For instance, some of these children have special food needs but regardless of that, we would just like to be able to heat up their lunch. So for us, a stove is very useful, its simple things like that.”
Ms. Iva said that while social workers and people studying disability care in tertiary institutions do come and help, the EIC does not draw the kind of support that other charities might.
“It would really help the parents of these children, some of who have other normal children to attend to, to be able to have some help with their children in school,” Iva said. “Sometimes, it is just me, a few parents and the many children.”
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Writer Profile
Lice Movono
Lice Movono is 26 years old. She began working as a journalist when she was 18. She specialises in in-depth feature articles and emphasises community development issues. She is fun-loving and easy going but loves to write about very serious issues.
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Comments
Ratu Tui Maibekana Vuramaibulu | Mar 16th, 2007
good piece of writing, especially when it comes from someone with journalist back ground. i'd love to read more from this young lady
قصيدة شعرية روح الأمل والطموح اللامحدود meddahi | Jul 21st, 2007
الشاعر العصامي مدحي العيد من البحر البسيط 8/05/2007 مجدي على الأبــواب طـارقا بـانا ... بعد السنيــن التي فــيـــها الضـنى كانا.. لقد خُضت أبحُرا من الهمـوم التي.. كانــت بـــــــلا رأفــــة تـهــــزّ الأبـدانا .. ولـكـنـها أعــطـــتــنا دروســا فـي .. الحـيـــاة نــافـــــــــعـة تُعــلـم الإنسـانا .. إني أرى وافـد الخـيـرات من بُعـد.. يُبـشــرني بمــجــد واســـــــــع أركـانا .. جدرانُه من ذهــب خـالص أبـهـرَ .. العُيــون مــن حُســــنه بريــــقُه ألوانا .. إن لم أخُض أهـوال بحـر قد هاجت.. أمــواجــه كالجـــبال الضـخــمة تلقـانا.. ما فائدةُ الإبـــــداع الـذي لم يـكن .. يــوما مــن الأيّـام يـشــتــــكي حـيـرانا .. كي يُخرج من فُؤاده شعـرا راقـيا .. يبقى مدى الدهـــر في سجـــلات دنيانا .. مُعبرا بالصدق عن أحــزان كانـت .. شديدة الكــــــرب مثـل العـلـقـم أحيـانا.. كأنها لــم تــكــن يـوما من الأيّـام .. مــــرَّت بــــنا تُـطـعـــمـنا مــن ألــم آنا.... أفراحـنا قد مضت بسرعة نسيانا .. مـن أفــئـــدة مــزجــت حُــبَّها أحــزانا .. كـم قـــد تعــلّـَمـنا مّــَمـن أهانـونا.. حـقـدا عـلى أفــكـار قــد بــنــت إنسـانا .. وكُل ذي نــعــــمة يُؤذونه نـقـمة .. لأنـه يــمــــنـحُ الأفـــــــــــكار إحـســانا .. وكُـلّ ذي حــكـمـة يلقى مُعارضةً .... شــديــدة حـســدا قــد أفــســـد إعــلانا.. كأنَّهم إعـتـرضــوا من جهالـتهم .... عـلى المــولى مانـــحا عـطـاءه ميـزانا .. هل من معـين يحمل الأعـباء معي.. إني تعـــبــتُ مــــن التـَّـحــــمـل أزمانا.. لقـد استـقـبـلني ذاك الـرجــل بلا .. ترحـيـبة تــمـلأ الصــــــدور إطـمئـنانا .. تـكــبّــَر دون حـــــــيــاء تـــرفُّـعا.. ولـم يُـمـهــلــني أن أقـــــــول بــيانا .. لم يخش من شاعـر لسانه صارم.. كما السُّـيــوف كـلامـه غــزا البُـلدانا .. أهـذّبُ الأقــوال تـهــذيــــبا يجعـلُ .. التعابــيـر تـــبــدو للـسّـَــامـع بُستانا .. قد أهـلــك الله كُــــلَّ البــخــــــلاء.. الذين قـد مـسكــوا أمــوالهـم طُغـيانا.. لقد منعـوا المحرومين من إعانة .. تُــقــرّبـهـم مـــن الحـــــــيـاة عـرفانا .. طـلـبتُ منه معــونةً أن يطــبع لي.. دوان أشـعــــار يُــحـــــــرّكُ الأذهـانا .. فقال لي نـفـدتْ أمــــوالُ خزيـنتي.. أمـس نـفـادا ألــحـــقى بـيَ الخُسرانا.. ستغـدو قصـائــــدي إلى كلّ فــرد .. يعــتــزُّ بـــأمّـَــتـه نــاهــــضا جـذلانا.. سيستنشقُ اللـغـة التي بــها نـزلَ.. الوحيُ الذي أحـيَ العـقــول الضّمآنا .. لولا مـحــبّـــتـــــكـم قـد سـقـــتـنا .. ذي قبل لجـفـّت دمـــوعُــنا أحـــزانا .. لمَـا كان القـلـب في أسمى محبَّته .. يعفو عن الناس إن أخطئوا غُـفـراتا .. يُعــطي مـن الأمـوال مُغـــدقا لهُمُ .. إذا ما جـــــــاءوا إلــــيـه قـلـــبـه لانا .. لو لم يتعــاطـف الأحــبّاءُ من ذي .. قـبـل لمَـا كُـنـّا عـلى الخـيــر إخــوانا .. وما زلــنـا نمـشـي بدون أهــداف .. تُحقّـقُ المسعى الـذي نـرجـــوهُ الآنا .. كل الذي قـد رأيــناه كـأن لـم يكن ... إلا حُــلُـما جـمــيـلا أطـــربَ الأذهــانا.. لولا المحبةُ هــذّبــت قلبا بالعطف ... يشتاق من فـقـدها دوما سعى حرمانا .. لكنا مثـل الوحـوش الضارية التي.. تعـدو وراء غـــــزال أعــــزل هــانا .... مَن ذا الذي سيُقاومُ الحسناء التي.. تمشي على استحـياء إن رأت أقرانا .. مهـــــــذبةُ اللســان إن كــلَّمــتـك .. كأنَّــها بـلــبُــلٌ يُــــــــغـــــرّدُ ألـحـانا ... أجـفـانُ عـيـنـــيـها إذا تحــــرّكــتا .. كأنّهُــما سهــــــامٌ أكـــثــرتْ جرحـانا .. فلم نُحصي عــــدد المُتيَّمــين هـُمُ .. أُلـوفٌ قــد قـُـــتــلــوا بالعـشق إمعانا .. جراحُـها مازالـت تـحــرقُ القـلـب .. منْ لوعة عشقها قلبي انكوى نيرانا.. ماأصعبَ الوحدة التي تجعلُ المرءَ.. يــبـــكي بدُمـــــوع تُـقـــطّعُ الوجـدانا .. كُـلّ مُــحـــب سـيـشتـكي مــرغـما.. ولـو حــــــــــــاز كُـــلّـــما أرادهُ الآنا .. .. يـــولــد الجـــــمال من رحـــــم المعــــــاناة من البحر البسيط 8/05/2007 مجدي على الأبــواب طـارقا بـانا
meddahi | Jul 21st, 2007
الشاعر العصامي مدحي العيد من البحر البسيط 8/05/2007 مجدي على الأبــواب طـارقا بـانا ... بعد السنيــن التي فــيـــها الضـنى كانا.. لقد خُضت أبحُرا من الهمـوم التي.. كانــت بـــــــلا رأفــــة تـهــــزّ الأبـدانا .. ولـكـنـها أعــطـــتــنا دروســا فـي .. الحـيـــاة نــافـــــــــعـة تُعــلـم الإنسـانا .. إني أرى وافـد الخـيـرات من بُعـد.. يُبـشــرني بمــجــد واســـــــــع أركـانا .. جدرانُه من ذهــب خـالص أبـهـرَ .. العُيــون مــن حُســــنه بريــــقُه ألوانا .. إن لم أخُض أهـوال بحـر قد هاجت.. أمــواجــه كالجـــبال الضـخــمة تلقـانا.. ما فائدةُ الإبـــــداع الـذي لم يـكن .. يــوما مــن الأيّـام يـشــتــــكي حـيـرانا .. كي يُخرج من فُؤاده شعـرا راقـيا .. يبقى مدى الدهـــر في سجـــلات دنيانا .. مُعبرا بالصدق عن أحــزان كانـت .. شديدة الكــــــرب مثـل العـلـقـم أحيـانا.. كأنها لــم تــكــن يـوما من الأيّـام .. مــــرَّت بــــنا تُـطـعـــمـنا مــن ألــم آنا.... أفراحـنا قد مضت بسرعة نسيانا .. مـن أفــئـــدة مــزجــت حُــبَّها أحــزانا .. كـم قـــد تعــلّـَمـنا مّــَمـن أهانـونا.. حـقـدا عـلى أفــكـار قــد بــنــت إنسـانا .. وكُل ذي نــعــــمة يُؤذونه نـقـمة .. لأنـه يــمــــنـحُ الأفـــــــــــكار إحـســانا .. وكُـلّ ذي حــكـمـة يلقى مُعارضةً .... شــديــدة حـســدا قــد أفــســـد إعــلانا.. كأنَّهم إعـتـرضــوا من جهالـتهم .... عـلى المــولى مانـــحا عـطـاءه ميـزانا .. هل من معـين يحمل الأعـباء معي.. إني تعـــبــتُ مــــن التـَّـحــــمـل أزمانا.. لقـد استـقـبـلني ذاك الـرجــل بلا .. ترحـيـبة تــمـلأ الصــــــدور إطـمئـنانا .. تـكــبّــَر دون حـــــــيــاء تـــرفُّـعا.. ولـم يُـمـهــلــني أن أقـــــــول بــيانا .. لم يخش من شاعـر لسانه صارم.. كما السُّـيــوف كـلامـه غــزا البُـلدانا .. أهـذّبُ الأقــوال تـهــذيــــبا يجعـلُ .. التعابــيـر تـــبــدو للـسّـَــامـع بُستانا .. قد أهـلــك الله كُــــلَّ البــخــــــلاء.. الذين قـد مـسكــوا أمــوالهـم طُغـيانا.. لقد منعـوا المحرومين من إعانة .. تُــقــرّبـهـم مـــن الحـــــــيـاة عـرفانا .. طـلـبتُ منه معــونةً أن يطــبع لي.. دوان أشـعــــار يُــحـــــــرّكُ الأذهـانا .. فقال لي نـفـدتْ أمــــوالُ خزيـنتي.. أمـس نـفـادا ألــحـــقى بـيَ الخُسرانا.. ستغـدو قصـائــــدي إلى كلّ فــرد .. يعــتــزُّ بـــأمّـَــتـه نــاهــــضا جـذلانا.. سيستنشقُ اللـغـة التي بــها نـزلَ.. الوحيُ الذي أحـيَ العـقــول الضّمآنا .. لولا مـحــبّـــتـــــكـم قـد سـقـــتـنا .. ذي قبل لجـفـّت دمـــوعُــنا أحـــزانا .. لمَـا كان القـلـب في أسمى محبَّته .. يعفو عن الناس إن أخطئوا غُـفـراتا .. يُعــطي مـن الأمـوال مُغـــدقا لهُمُ .. إذا ما جـــــــاءوا إلــــيـه قـلـــبـه لانا .. لو لم يتعــاطـف الأحــبّاءُ من ذي .. قـبـل لمَـا كُـنـّا عـلى الخـيــر إخــوانا .. وما زلــنـا نمـشـي بدون أهــداف .. تُحقّـقُ المسعى الـذي نـرجـــوهُ الآنا .. كل الذي قـد رأيــناه كـأن لـم يكن ... إلا حُــلُـما جـمــيـلا أطـــربَ الأذهــانا.. لولا المحبةُ هــذّبــت قلبا بالعطف ... يشتاق من فـقـدها دوما سعى حرمانا .. لكنا مثـل الوحـوش الضارية التي.. تعـدو وراء غـــــزال أعــــزل هــانا .... مَن ذا الذي سيُقاومُ الحسناء التي.. تمشي على استحـياء إن رأت أقرانا .. مهـــــــذبةُ اللســان إن كــلَّمــتـك .. كأنَّــها بـلــبُــلٌ يُــــــــغـــــرّدُ ألـحـانا ... أجـفـانُ عـيـنـــيـها إذا تحــــرّكــتا .. كأنّهُــما سهــــــامٌ أكـــثــرتْ جرحـانا .. فلم نُحصي عــــدد المُتيَّمــين هـُمُ .. أُلـوفٌ قــد قـُـــتــلــوا بالعـشق إمعانا .. جراحُـها مازالـت تـحــرقُ القـلـب .. منْ لوعة عشقها قلبي انكوى نيرانا.. ماأصعبَ الوحدة التي تجعلُ المرءَ.. يــبـــكي بدُمـــــوع تُـقـــطّعُ الوجـدانا .. كُـلّ مُــحـــب سـيـشتـكي مــرغـما.. ولـو حــــــــــــاز كُـــلّـــما أرادهُ الآنا .. .. يـــولــد الجـــــمال من رحـــــم المعــــــاناة من البحر البسيط 8/05/2007 مجدي على الأبــواب طـارقا بـانا
meddahi | Jul 21st, 2007
The poet's self-reliant Eulogistic feast from the sea simple 8/05/2007 Magdi on doors Targa Pana ... After years in which they were languishing .. The shaken Abahra of concerns .. No mercy was shaking Alabdana .. But they gave us lessons in .. Life useful learning Alansana .. I see good things from newcomer after .. Ephrne Bamjad broad pillars .. Walls of gold sincere Bedazzle .. Eyes bright sheen of faith .. If Aki had Hajat horrors Sea .. Huge waves mountains Taleghana .. What is the use of creativity, which was not .. Days complaining Hirana .. In order to emerge from his heart poems, well .. Keep the old records in the elderly .. Reflect the truth about the grief .. Severe distress such as pill sometimes .. As if not days of days .. We have experienced the pain I am fed .... Our excitement had passed quickly Nsiana .. Hearts combined love of sorrow .. How have learned who Ahanona .. Malice ideas had built Lansana .. All of a mixed blessing Eudonh .. It gives ideas for charity .. All of wisdom is opposed .... Severe Invidiously has spoiled the declaration .. If they objected to Ghalthem .... The donor Mawla tender balance .. Is it carries a certain burden with me .. I am tired of endurance Azmana .. To me that the man has no .. Welcome filled breasts reassurance .. Unabashedly grow above the cold .. Not to say a Emehline .. No fear of a poet to his tongue strict .. He also swords invaded Albldana .. Ahmb makes polite words .. The expressions seem Got Bestana .. May God kills all Scrooges .. Who had deduced their tyrannical .. We have prevented deprived of subsidy .. Fittingly bring it closer to life .. Aid asked him to print me .. Doan notice excite Aladhana .. He told me exhausted funds Kzinte .. Yesterday Nevada Haki me Aleksrana .. Would Kassaedi to everyone .. Proud of his nation Jzlana important .. Sestenck language of the hostel .. The revelation that greet Aldmana minds .. Lula has Mahbetkm Skatna .. Ever dried tears of sorrow .. As the heart in the highest love .. Forgiving people that Akhtawa Ghafrata .. Give money Magdakka them .. If it came to the heart of Anna .. If not sympathize loved ones than ever .. Before what we were good brothers .. We continue walking without goals .. Verification endeavor which we Alana .. All that we have seen was not ... Only beautiful dream Aterb Aladhana .. Not for the love refined heart compassion ... Yearns of loss always sought disadvantaged .. We would like monsters fierce .. Just behind reindeer unarmed Hannah .... Who is Belle, which will resist .. Walking shyly felt that peer .. Graceful that your tongue .. Bailey played as leader ... If Thrkta blink her eyes .. Arrows as though you go wounded .. No count Alemtemen are .. Thousands have been killed Bashak avoid .. Wounds still burns the heart .. From the heartbreak of my heart ruling centralized Kigoma fire .. Maaseb unit, which makes one .. Go cry tears Alojaddana .. Every loving Seshetki compelled .. If Haz whenever will Alana .. .. Beauty born from the womb of suffering from the sea simple 8/05/2007 Magdi on doors Targa Pana
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